Another rambly tired post at silly o’clock of me kinda talking to myself and ’emptying’ my mind a bit.
If I go by the NHS website of listed symptoms, I can tick off almost all of the symptoms for fibromyalgia. The only one I don’t have is the sensitivity to touch and light other than flashing lights they do my head in.
Fibromyalgia is one of those tricky issues where not all doctors and medical professionals actually ‘believe’ in it, many thinking it’s all in your head. I can kinda see why they think that, because there are a lot of people who fake it or play on it to get out of working/get painkillers etc, and from what I’ve read fibromyalgia is something that can’t be proven or disproven by doctors, they literally have to go on what the patient claims.
I know one person who claims to have fibromyalgia that seriously plays on it/fakes it. She has always been lazy and expected everyone to do everything for her. She’s obese if not morbidly obese. And she’s generally one of those people that just wants to be able to say she’s got something wrong with her. I lived with her at one point so I saw her almost every day. She used to claim that she couldn’t go to the kitchen and get her medication so her husband would bring it in to her each time. However, she could go out to the kitchen with no walking or standing issues and reach into the same cupboard and get her cigarettes out then stand outside smoking perfectly fine- sometimes even being out there for an hour or more without sitting or leaning on anything if she was chatting to a neighbour. Her ‘fibromyalgia’ came and went when it suited her.
I’m not someone to fake pain etc, I’ve seen what real pain looks like in my Nan who has Rheumatoid Arthritis and Osteoporosis, so I would never claim to be in pain to a doctor if I actually wasn’t. Again, there are unfortunately people out there who do.
I’m writing this as I’m laying in bed with my lower back feeling as if it’s being crushed, my hips feel like they’re magnets the wrong way round with my legs feeling as though they’re trying to push away from the hip joint, my ankles and feet are throbbing with pain from walking to the shop today and from getting cold, and my restless legs syndrome is kicking in though mine isn’t just my legs it’s often my whole body, right now it’s arms and legs making me twitch and cramp. It’s pretty uncomfortable and rather painful in places too.
I could go to a doctor about it, but if it is fibromyalgia I don’t particularly want to end up on medication that messes around with weight etc. Since overdosing in 2011, I don’t like being on medication or having a lot in my possession. The only medication I have is my buscopan for IBS, and the occasional ibuprofen if monthly stomach cramps get too much for me. I also don’t want my doctor to think I’m making it up like some people do.
There’s probably an explanation for my symptoms that aren’t to do with fibromyalgia at all. For example, my aches and pains are likely to stem from the Pes Planus I’ve always had that’s made my ankles weak and buggered up my ligaments having a knock on effect to knees, hips and back from walking funny. As a baby I had clicky hips that would cramp so badly i wouldn’t be able to move at all til it stopped, and they still play up now. My daughter effected my lower back while I was pregnant. I have a high chance of developing arthritis if I don’t already have a form of it now. I go in and out of being anaemic. My blood pressure is stupidly low causing dizziness every time I stand up from sitting/if stood too long. There’s a lot of different explanations for each symptom I have.
At the moment, my ‘symptoms’ whatever they may be symptoms of, don’t really stop me from doing day to day things, but it doesn’t mean it’s not painful or difficult sometimes. I just guess I’m kinda used to it and know when I need to take a break etc.
I may well go to the doctors and discuss it all with them to see if there’s an underlying problem such as fibromyalgia, or if it’s all just simply how I am and how my body works. But then I possibly won’t because I’m still able to live my life and do most things maybe it’s a type of tolerance I’ve built up, who knows!
Bodies are strange things aren’t they?
🔹immeamy, you’re you, and that’s the best way to be🔹